3 min read
Diversity, equity and inclusion in clinical research starts with awareness of the perceptions of different communities. Repairing and reducing mistrust within underrepresented communities means learning how to recognize the obstacles and increase sensitivity for inclusion. Listening to people within these communities can guide health and research inclusivity initiatives.
Teckro engaged the Center for Information and Study on Clinical Research Participation (CISCRP), an independent non-profit organization, to organize and facilitate a virtual advisory meeting among LGBTQ+ patients and community members. There is no one-size-fits-all to engaging LGBTQ+ individuals in clinical research or in healthcare overall, but the first step is listening. How one identifies is an integral part of traditional inclusion or exclusion from clinical research trials and limits access for people who do not self-identify in traditional categories.
Our goals were to:
We are broadly sharing results from the four hours of discussion to help inform considerations and best practices when engaging with the LGBTQ+ community, ultimately optimizing clinical trial experiences in the future.
Malia Lewin shares her perspective on why diversity, equity and inclusion are important for clinical trials and her key learnings from the LGBTQ+ advisory board.
Clara MacKay writes about recent initiatives to reach the LGBTQ+ community as part of an effort to make sure that no person with ovarian cancer is left behind.
Through the advisory meeting hosted by CISCRP, our goal was to surface some of the issues that create barriers to care for the LGBTQ+ community. Out of the advisory board meeting, we believe there are some simple steps for inclusivity of LGBTQ+ individuals and the LGBTQ+ community in all aspects of care:
Through projects such as this collaboration between Teckro, CISCRP and our community advisors, we hope to invite patient and prospective patient voices from a breadth of communities to inform actions that advance inclusion in clinical research. For more information or to talk about the advisory board meeting in greater detail, email us at firstname.lastname@example.org.